Photo series highlights women with spine condition

Shyamantha Asokan
BBC News, West Midlands
Mandip Singh Seehra A woman stands against a red backdrop. She is wearing a pink suit jacket and a multi-coloured top. She has straight black hair.Mandip Singh Seehra
Ayesha Jones, a photographer based in Coventry, has documented ten women with scoliosis in her new book

Ayesha Jones recalls that, when she was 12, a doctor told her she would "grow up to be a pretty girl with an ugly back."

But she turned to him and said: "It won't be ugly, it will just be different."

Ms Jones had been diagnosed with scoliosis, a condition where the spine twists and curves to the side, and sometimes requires a back brace or surgery.

Now a photographer based in Coventry, she has produced a book that documents 10 women living with scoliosis, as well as images of herself.

Ayesha Jones A black and white photo shows a woman sitting on a hospital bed, with a stitched down her back. She is wearing trousers and a scarf but no top. The photo is taken from the back and her face is not visible.Ayesha Jones
Ms Jones said women with scoliosis started contacting her on Instagram after seeing self-portraits she did before and after her surgery

Scoliosis usually starts in children aged between 10 and 15, according to the NHS, and it is more commonly diagnosed in girls than boys.

It can cause people to lean to one side, have one protruding hip, or suffer from back pain, although many people have milder curves that do not need treatment.

Ms Jones had the idea for her project when women with scoliosis started sending her their stories on Instagram, after they saw a series of self-portraits she did before and after her surgery.

"With scoliosis, people want to talk about it as it's such a solo thing that they go through," she said.

She put out an open call via the Royal Orthopaedic Hospital in Birmingham, as well as on Facebook forums for scoliosis, to find women to be photographed and interviewed. The majority of the ten women are from the West Midlands.

Ayesha Jones A woman stands against a dark grey studio backdrop. She is photographed from the back and her face cannot be seen. She is wearing jeans and a black bra. She has a scar running down the top half of her back.Ayesha Jones
The photographer interviewed the women about how scoliosis had affected them emotionally

Ms Jones said her book included interviews with one woman who had to wear a back brace at school, while another discussed how she was inspired by her condition to become a psychotherapist and help others.

"[I wanted to show that] people are individuals, not just a number or a condition," she said.

Ms Jones tried different therapies as a teenager, but her curve continued to deepen and she eventually had spinal fusion surgery at the Royal Orthopaedic Hospital in her early twenties.

She said her curve had since lessened considerably and she was not limited by her condition, but had to exercise regularly or her joints became stiff.

Now aged 35 and the mother of a seven-year-old son, she said it had been "therapeutic" to work on the book and reflect on her experiences.

Ayesha Jones A composite photograph with two rows. In each row, there are four women sitting on pink stools. They have their backs to the camera and their heads bowed. They are wearing jeans and either no top or just a bra. Some have spines that curve noticeably sideways.Ayesha Jones
Ms Jones said she wanted to document several women with scoliosis, in order to raise awareness of the condition

Ms Jones said she hoped her photo-series would spur more research into what caused scoliosis and more awareness of its emotional impacts.

She has idiopathic scoliosis, where the cause is unknown, and this accounts for around 80% of cases according to the NHS.

Ms Jones said she wanted to "amplify the message" of her earlier self-portraits by photographing several women with scoliosis, adding that women's symptoms were also often overlooked in other health issues such as endometriosis.

"There many conditions that women are suffering from and they are not getting the support they need," she added.

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